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Giving patients granular control of personal health information: Using an ethics “Points to Consider” to inform informatics system designers
Electronic health records Ethics Medical records systems Computerized Patient access to records Physician–patient relations Privacy
2014/11/17
OBJECTIVE: There are benefits and risks of giving patients more granular control of their personal health information in electronic health record (EHR) systems. When designing EHR systems and policies...
Questioning the Quantitative Imperative: Decision Aids, Prevention, and the Ethics of Disclosure
decision aids disclosure
2014/11/17
Patients should not always receive hard data about the risks and benefits of a medical intervention. That information should always be available to patients who expressly ask for it, but it should be ...
A Needs Assessment to Build International Research Ethics Capacity at Moi University
Research Moral and ethical aspects Moi University Indiana University School of Medicine Medicine Research Medical care Needs assessment
2014/11/17
International collaborators in biomedical sciences face ethical challenges in the design,review, and conduct of research. Challenges include differences in research ethics capacity, cultural differenc...
The value of information and the ethics of personal-genomic screening
Economics Ethics Evidence-Based Medicine Genetic Screening Genome, Human Health Services Accessibility Mass Screening Practice Guidelines as Topic
2014/11/17
Personal genomic screening, especially when marketed direct-to-consumers, threatens to worsen the inefficient use of healthcare resources that Burger and Kass discuss in the case of unproven screening...
Outcome of a research ethics training workshop among clinicians and scientists in a Nigerian university
ethics clinicians
2008/11/14
Background
In Nigeria, as in other developing countries, access to training in research ethics is limited, due to weak social, economic, and health infrastructure. The project described in this artic...
Clinical Ethics Consultation: Examining how American and Japanese experts analyze an Alzheimer's case
Ethics Consultation American Japanese
2008/11/14
Background
Few comparative studies of clinical ethics consultation practices have been reported. The objective of this study was to explore how American and Japanese experts analyze an Alzheimer's ca...
Ethics Review Committee approval and informed consent: an analysis of biomedical publications originating from Sri Lanka
biomedical Ethics
2008/11/14
Background
International guidelines on research have focused on protecting research participants. Ethical Research Committee (ERC) approval and informed consent are the cornerstones. Externally spons...
How do we know that research ethics committees are really working? The neglected role of outcomes assessment in research ethics review
ethics committees really working
2008/11/14
Background
Countries are increasingly devoting significant resources to creating or strengthening research ethics committees, but there has been insufficient attention to assessing whether these comm...
Background
Approval of the research proposal by an ethical review committee from both sponsoring and host countries is a generally agreed requirement in externally sponsored research.
Background
The concept of evidence-based medicine has strongly influenced the appraisal and application of empirical information in health care decision-making. One principal characteristic of this c...
Health Research Ethics Committees in South Africa 12 years into democracy
Ethics Committees South Africa
2008/11/13
Background
Despite the growth of biomedical research in South Africa, there are few insights into the operation of Research Ethics Committees (RECs) in this setting. We investigated the composition, ...
Ethics takes time, but not that long
Ethics time
2008/11/13
Background
Time and communication are important aspects of the medical consultation. Physician behavior in real-life pediatric consultations in relation to ethical practice, such as informed consent ...
An eight-year follow-up national study of medical school and general hospital ethics committees in Japan
general hospital ethics committees
2008/11/13
Background
Ethics committees and their system of research protocol peer-review are currently used worldwide. To ensure an international standard for research ethics and safety, however, data is neede...
Knowledge, attitudes and practice of healthcare ethics and law among doctors and nurses in Barbados
Knowledge attitudes healthcare ethics
2008/11/12
Background
The aim of the study is to assess the knowledge, attitudes and practices among healthcare professionals in Barbados in relation to healthcare ethics and law in an attempt to assist in guid...
The activity of French Research Ethics Committees and characteristics of biomedical research protocols involving humans: a retrospective cohort study
Ethics Committees characteristics
2008/11/11
Background
Clinical trials throughout the world must be evaluated by research ethics committees. No one has yet attempted to clearly quantify at the national level the activity of ethics committees a...